Autism Awareness and the role of the Autism Diagnostic Observation Schedule (ADOS-2) in Diagnostic Practice
These five short videos aim to deepen awareness of current issues in Autism, suggests potential ways to support Autistic people including what good diagnostic practice looks like and the role of the ADOS-2.
Delivery of content supported by powerpoint slides.
Is there a cost for this learning resource? :
No
Has this resource been accredited or endorsed by any organisation? :
NHS Education for Scotland (NES) and the University of Edinburgh
Training model:
These videos intend to raise awareness of current issues in Autism and its assessment, as well as ideas for use of language and potentially helpful supports and accomodations for Autistic people. They will be helpful for all staff who work with Autistic or otherwise neurodivergent people in their job role.
NES and the University of Edinburgh hope the videos will be especially helpful for the managers who decide which staff should be put forward for the full ADOS-2 training package.
Staff capacity and time commitment:
Just over an hour to view all the videos plus time to reflect on any changes to practice or service delivery.
Author/developer:
NHS Education for Scotland (NES) / University of Edinburgh
Contact for Further Development
Please contact psychology@nes.scot.nhs.uk for more information.
Link to resource
Quality dimensions
Usability
The Intended Learning Outcomes are as follows:
- I understand the criteria used to diagnose Autism
- I understand the role of the ADOS-2 in the diagnosis of Autism
- I am aware of the content and purpose of the ADOS-2 assessment tool
- I understand what is involved in becoming accredited to use the ADOS-2 in clinical practice
- I understand Autistic people's Human Rights, the challenges that can be faced by Autistic people in wider society as well as what I can do to uphold their rights.
Learning resources / course:
- What is Autism (15 minutes long)
- Use of langauge
- Autism, Neurodiversity & the Spectrum
- Clinical Diagnostic Criteria
- Variation in Features of Autism
- Takeaways & reflections
- How is Autism Diagnosed? (12 minutes long)
- The Process of Diagnosis
- What are the Key Components of Assessment?
- Developmental History Taking
- Contextual Information, Impact & Functioning
- Clinical Observations
- What is Involved in the ADOS-2?
- Deciding which Module to use
- How does the ADOS-2 Fit into Clinical Practice?
- Who can Deliver the ADOS-2?
- How is the Information from the ADOS-2 used?
- Summary of Key Learning Points
- The NES ADOS-2 Training Course (9 minutes long)
- What the ADOS-2 training covers
- Who the ADOS-2 training is for
- What are the steps in the ADOS-2 training process
- ADOS-2 course overview
- Pre-course work and preparation (3 days, face-to-face or online)
- The ADOS-2 course itself (4 days)
- Post-course work and accreditation in the use of ADOS-2
- Post-course ADOS-2 delivery supports and coaching
- What can you do to support Autistic people? (14 minutes long)
- Environmental Changes
- Communication, Clarity, Consistency
- Sensory Environment
- Takeaways & Reflections
- Wider Issues for Autistic People in Society (12 minutes long)
- Language Use
- Neurodiversity & Autistic Rights
- Stigma & Discrimination
- Stigma & Intersectionality
- Parents & Colleagues who may also be neurodivergent
- Takeaways & Reflections
Supports
Supports - Workforce
Ring-fenced time to view and reflect on the videos.
Supports - Technology
A laptop, phone or tablet to view the videos plus internet connection.
Supports - Administrative
None
Supports - Financial
None
Evidence base
These videos were co-produced with Autistic people and they reflect accepted diagnostic practices as outlined in National Institute for Health and Care Excellence (NICE) good practice guidelines:
Clinical guideline [CG128]Published: 28 September 2011 Last updated: 20 December 2017
Clinical guideline [CG142]Published: 27 June 2012 Last updated: 14 June 2021
Impact assessments
Reaction
The REACTS measure is available within the Training Evaluation Toolkit
Learning
Reflective practice prompts are included at the end of each video
The Intended Learning Outcomes can be rated before and after viewing the videos using this form: https://www.digitallearningmap.nhs.scot/the-training-evaluation-toolkit/tools-to-measure-learning/
Behaviour
The Reflective Practice prompts indicate potentially helpful changes in practice and service delivery and could be used to audit any changes in these by adapting the resources included in the Training Evaluation Toolkit.
A key outcome, that will be monitored by NES, is that the staff who are put forward for full ADOS-2 training are the right staff, who understand that training is a big commitment and who have capacity to complete Autism assessments as a major part of their job role.
Results
These videos are intended to shape staff practices rather than directly impact CYP's mental health and wellbeing.
KSF dimension information in relation to the learning resource
Child Development and Attachment
Included in Training (Knowledge)
- Be aware of the changing development needs of children and young people, such as relationships with peers and adults, education, regular patterns of diet, sleep and exercise
- Be aware of the range of typical developmental stages
- Be aware of the range of factors that impact typical development, including adverse experiences, trauma, physical health conditions and their treatment
Not Included in Training (Knowledge)
Included in Training (Knowledge)
- Have a good working knowledge of resources available to support families, particularly those who face additional challenges and/or are vulnerable
Not Included in Training (Knowledge)
- Be aware of the components of a healthy parent-infant relationship, and how it develops through childhood
- Be aware of the changes in relationships with parents, authority figures and peers in adolescence
- Have a broad understanding of the factors which promote good parentchild relationships, including an understanding of attachment theory and different parenting styles
- Be aware that some families, such as those whose child has longterm physical health conditions face additional challenges and complexities which impact on usual patterns of parenting
Included in Training (Knowledge)
Not Included in Training (Knowledge)
- Be aware that some children will have had few opportunities to play, due to physical health conditions, disability or early adversity
- Be aware of the positive and negative impacts of electronic media on child development
Included in Training (Knowledge)
- Be aware of the factors that help child, young people and their families to successfully manage transitions
- Be aware that transitions can be emotionally challenging, even when generally experienced as positive
- Be aware of the importance of understanding the transition from the perspective of the child or young person, and how this might differ from the perspectives of others
Not Included in Training (Knowledge)
Included in Training (Knowledge)
Not Included in Training (Knowledge)
- Be aware of the wide range of different family structures, including kinship care and other care provision
- Be aware of the potential impact on families of adversity, such as loss, abuse, social change, socio-economic disadvantage and health inequalities
- Be aware that experience of emotional distress and symptoms of mental health are influenced by culture and background
- Be aware of the range of cultural, social and religious differences in relation to family relationships, and parenting style that are likely to be present in the local population
- Be aware that internal beliefs and expectations may affect a child, young person and their family’s ability to engage with helping agencies
Included in Training (Knowledge)
Not Included in Training (Knowledge)
- Be aware trauma and adverse experiences can impact a child or young person’s development and the ability to form attachment/ therapeutic relationships
- Be aware that trauma can cause developmental regression and/ or delays, such as in language development and learning difficulties due to emotional dysregulation (fight, flight, freeze response), preoccupation with danger
- Be aware that children and young people can be affected by sensory reminders of traumatic experiences
- Be aware that the amount of adversity is related to the likelihood of negative impact for children
Included in Training (Knowledge)
- Be aware that neurodevelopmental conditions occur on a spectrum and presentation will vary depending on factors such as age, developmental stage, gender and setting
- Be aware of how impaired communication can be a marker for common neurodevelopmental conditions and the importance of early intervention
- Be aware that neurodevelopmental diversity can impact wellbeing and mental health
Not Included in Training (Knowledge)
Mental Health in Children, Young People and their Families
Included in Training (Knowledge)
- Be aware that some groups of children and young people are more at risk of mental ill health, and the barriers they may face in accessing help and support
Not Included in Training (Knowledge)
- Be aware of the common mental health difficulties in children and young people, including anxiety and low mood
- Be aware that sustained change in presentation, distress and impact on daily functioning are key indicators of mental health and wellbeing needs
- Be aware that mental health difficulties can impact on family functioning
- Be aware of the links between mental health and wellbeing and mental ill health
- Be aware of the potential for social media to have adverse and/or protective effects on mental health
Included in Training (Knowledge)
- Be aware that a child or young person may experience distress in non-verbal and sensory ways and communicate distress through actions, or experience physical health symptoms
- Be aware that experiences of distress, mental illness and trauma can interrupt the typical building blocks of child development, and that this can have effects throughout development and into adulthood
Not Included in Training (Knowledge)
- Be aware of how common mental health difficulties may present at different ages
- Be aware that differences in development, not just age can impact how distress and mental health difficulties present
- Be aware that different mental health difficulties are more common at different ages and stages of development
Included in Training (Knowledge)
Not Included in Training (Knowledge)
- Be aware that long-term conditions can impact wellbeing and mental health and that children and young people may need additional supports to manage this
Included in Training (Knowledge)
- Be aware that there are recognised diagnostic criteria for mental health difficulties and disorders in children and young people
Not Included in Training (Knowledge)
Included in Training (Knowledge)
Not Included in Training (Knowledge)
- Be aware of how self-esteem, selfworth, self-identity and confidence impact mental health and wellbeing
- Know that the ability of children to regulate their emotions arises from multiple experiences of co-regulation with attuned adults/others
- Be aware of services in the community that can support children, young people and their families in these areas
Included in Training (Knowledge)
- Know about local services and organisations that can support adults with their mental health
Not Included in Training (Knowledge)
- Be aware of the importance of good parental mental health for the parent-child relationship and child development
- Be aware that parental mental health difficulties can impact on a child or young person’s wellbeing
Included in Training (Knowledge)
- Be aware that stigma can lead to discrimination
- Be aware that stereotypes and negativity surrounding mental ill health may mean that many children and young people feel that they have no one to talk with
- Understand how stigma is framed and reinforced by myths and language
Not Included in Training (Knowledge)
- Understand that children, young people and their families may be reluctant to disclose difficulties or seek help for fear of being stigmatised
Engagement, Containment and Communication
Included in Training (Knowledge)
Not Included in Training (Knowledge)
- Be aware of the importance of having a good relationship with a child or young person based on trust and openness while also maintaining professional boundaries
- Be aware that professional boundaries can be challenged by an urge to be overly involved with and/or avoidant of a child or young person
Included in Training (Knowledge)
- Be flexible and allow the child or young person to discuss issues which are important to them being respectful, warm, friendly and affirming
- Be open and trustworthy demonstrating honesty through selfreflection
- Demonstrate genuine interest in the child or young person’s activities and friendships, including the sense they are making of their identity, sexuality and cultural/spiritual beliefs
- Assess how differences in language, literacy, culture and disability may affect the relationship with the practitioner and consider how to manage this, and be able to arrange appropriate support, for example, interpreting services, where appropriate
- Provide support that accepts each person for who they are regardless of age, disability, gender identity, race, ethnic or national origin, religion or belief, sexual orientation or socioeconomic background
- Incorporate an awareness of issues relating to stigma surrounding mental health concerns into sensitive and respectful communication
- Demonstrate responsibility by challenging unhelpful language and myths
Not Included in Training (Knowledge)
- Be able to help children and young people who may struggle to disclose their difficulties within their community, taking this into account when accessing interpreting services or groups which provide support to people from a particular cultural, ethnic, religious or disability background
Included in Training (Knowledge)
Not Included in Training (Knowledge)
- Be able to discuss different emotions and communicate with children and young people that having these emotions is OK and typical
- Know that emotions can be ‘projected’ into other people if they are too painful to be tolerated, for example, in situations of bullying
Included in Training (Knowledge)
Not Included in Training (Knowledge)
- Be able to encourage the expression of all emotions, including those which may be strong/negative emotions by using OARs model (open ended questions, affirmations and reflections)
- Be able to talk to children when they are distressed, and help them cope with their feelings using emotion coaching strategies
- Be able to teach and model emotional self-regulation techniques
Included in Training (Knowledge)
Not Included in Training (Knowledge)
- Be aware of the impact of development on a child or young person’s understanding
- Understand that developmental stage, neurodiversity and trauma history may impact how children and young people communicate their mental health needs
Included in Training (Knowledge)
- Be able to provide developmentally appropriate information and activities to help children and young people express their views
- Be able to adapt communication using a range of methodologies for communicating with and listening to children and young people
- Be able to check that the child or young person has understood a question or piece of information
- Be able to seek guidance on further adapting communication as required
Not Included in Training (Knowledge)
Included in Training (Knowledge)
Not Included in Training (Knowledge)
- Be aware that withholding information could place a person at risk of significant harm
- Know the legal definitions of consent to an intervention, for example that consent must be freely given, the young person must be suitably informed, and that consent can be withdrawn at any time
- Understand capacity, for example, that young people age 16 or over are presumed to have capacity to give or withhold consent, and unless there is evidence to the contrary, that a child under 16, who can understand and make their own decisions, can give or refuse consent
- Know that capacity and competence are functional (not dependent on age) such that a child with sufficient capacity and intelligence to understand the nature and consequences of what is proposed is deemed competent to give consent
- Be aware of parental rights and responsibilities, including the right to consent to an intervention on behalf of a child who does not have capacity
- Know that the safety needs of a child or young person take precedence over issues of consent and confidentiality for example if a young person is at risk of self-harm or any other harm
Included in Training (Knowledge)
Not Included in Training (Knowledge)
- Be able to explain and discuss information sharing, confidentially and its limits, with a child or young person
- Be able to explain and discuss information sharing, confidentiality and its limits with parents
- Be able to gain informed consent from a child or young person to conduct an intervention
- Be able to seek specialist advice to make information accessible
- Be able to explain the benefits and risks of a proposed intervention to a child or young person using adapted communication as required
- Be able to maintain confidentiality appropriately, for example be able to respond to requests for information that are inappropriate, such as estranged family members
Identification and Understanding of Need
Included in Training (Knowledge)
Not Included in Training (Knowledge)
- Be aware that the initial assessment and plan should be regularly updated in response to progress, and being responsive to new information, and all stakeholders kept informed
- Know of the role of services and agencies in the assessment and development of a child’s plan
Included in Training (Knowledge)
Not Included in Training (Knowledge)
- Be able to identify risk and protective factors
- Be able to draw together different strands of information to contribute to the child’s assessment and plan
- Be able to use and apply the GIRFEC tools for a single agency wellbeing assessment and child’s plan
- Be able to identify people, services and agencies who need to be included in the assessment and development of a child’s plan and involve children and young people in all aspects of their care
- Be able to share information across agencies within the constraints of consent and confidentiality, on a ‘need to know’ basis and in a proportionate, relevant, accurate, timely and secure manner with the aim of supporting children and young people and preventing the need for them to re-tell painful life-stories over and over again
- Work collaboratively with children and young people, using strength-based communication skills to promote their participation in gathering information and making decisions
- Document decisions that have been taken and ensure the evidence for taking these decisions is recorded
Included in Training (Knowledge)
Not Included in Training (Knowledge)
- Be aware of standardised questionnaires and assessments that help to gather information on strengths and difficulties of a child
Included in Training (Knowledge)
- Be able to describe features of possible neurodiversity and where to seek advice about diagnosis and supports
Not Included in Training (Knowledge)
- Using knowledge of developmental stages, including physical, emotional, interpersonal, cognitive, language and social milestones, identify if a child or young person’s development is broadly typical for their age
- Be able to notice when a child or young person has regressed, or not made the progress expected of them
- Be able to observe and describe the interactions between a child or young person, and their family
- Be able to gather information from speaking to a child or young person and their family about their history
- Be able to use facilitation, empathy, clarification, and summary statements to gather information
- Be able to gather the views of all the members of the family
- Be able to gather the views of the child on their wellbeing using developmentally appropriate means and the SHANARRI wellbeing indicators within the GIRFEC framework
- Be able to elicit specific, detailed and concrete examples of behaviour when assessing and exploring the concerns of family members
- Recognise the signs that a child may have experienced trauma through their behaviour, emotions and ability to relate to others
- Recognise when further assessment of the impact of trauma on a child’s development is required and make requests for assistance as necessary
Included in Training (Knowledge)
Not Included in Training (Knowledge)
- Be aware of and understand the role partnership plays in safeguarding and have knowledge of the procedures adopted by partner agencies
- Be aware that an element of risktaking behaviour is typical and necessary part of development
- Be aware that bullying can become a formal child protection issue
- Be aware of risk and protective factors for different forms of harm
Included in Training (Knowledge)
- Practice in a non-discriminatory manner to respect and support parental autonomy, while always prioritising safety and welfare
Not Included in Training (Knowledge)
- Identify families at risk of multiple adversities and refer to appropriate services in a timely manner
- Work with other professionals to manage and mitigate risk and to boost protective factors
- Contribute to the development of a risk plan by attending and contributing to multi-agency meetings including case conferences, and core group meetings
- Be able to support children who have experienced adversity through child protection processes, advocacy and relationship-based approaches designed to create external and internal safety and reduce risk
Included in Training (Knowledge)
Not Included in Training (Knowledge)
- Be aware of the ongoing need to reflect on your own practice while working with children and young people at risk of harm
Included in Training (Knowledge)
Not Included in Training (Knowledge)
- Seek support to enhance both your practice and for you to manage your emotional response to working with children and young people at risk of harm
Included in Training (Knowledge)
- Understand the aim is to reach an agreed description of the strengths and difficulties and to explain the development and maintenance of the child or young person’s strengths and difficulties and provide options for intervention and supports
- Be aware the assessment process can be an emotional time for children, young people and their families
Not Included in Training (Knowledge)
Included in Training (Knowledge)
Not Included in Training (Knowledge)
- Be able to seek the views of the child, young person and family throughout the process
- Support a child or young person to understand the outcome of any assessment
Supports and Interventions
Included in Training (Knowledge)
Not Included in Training (Knowledge)
- Be aware that while potentially offering support and services to parents, the needs of the children and young people are primary
- Know the difference between universal preventive programmes and targeted interventions
- Have a good working knowledge of resources available to support families, particularly those facing additional vulnerability
- Have a broad understanding of evidence-based practice and how this informs the selection of both universal and targeted interventions across settings
Included in Training (Knowledge)
- Use strengths-based approaches, that recognise and build upon a child and family’s own abilities, knowledge skills and potential
- Ensure that support and services are accessible to children, young people and their families who may face barriers in accessing help and support
- Adapt your usual practice to meet the developmental needs of a child or young person
- Create environments that are inclusive and allow children and young people to be understood
Not Included in Training (Knowledge)
- Promote social and emotional development through universal approaches, such as supporting play, positive parenting interventions and personal social education (PSE)
- Work with others in the wider professional network to ensure children and their families are supported when compulsory measures are necessary
- Talk with children, young people, and their families about the impact of social media on protective and adverse factors for mental health and wellbeing
- Encourage and scaffold child and young people to engage in valued and meaningful social activities
Included in Training (Knowledge)
- Reduce and challenge discrimination and stigma against CYP experiencing mental health issues
Not Included in Training (Knowledge)
- Be able to talk with children and young people and/or families, about common mental health difficulties
- Share knowledge about mental health in children and young people with colleagues
- Explain to families the approaches available to support parent – child relationships
- Share information about typical development with children and young people and colleagues as required
Included in Training (Knowledge)
- Be aware of the importance of clear and timely communication about endings and transitions
Not Included in Training (Knowledge)
- Be aware of the impact of endings and transitions on staff working with children and young people
- Be aware of any unhelpful avoidance of endings
- Be aware that ending a relationship with a professional in a therapeutic relationship can trigger feelings for a child or young person that relate to previous losses or bereavements that they have experienced
Included in Training (Knowledge)
- Be able to assist children, young people, and their families with managing transitions in a healthy way
Not Included in Training (Knowledge)
- Prepare children and young people and their families for a planned ending of contact and assess any risk associated during or after this ending
Included in Training (Knowledge)
- Be aware of wider support and services that provide services to adults that may be working with parents
Not Included in Training (Knowledge)
- Know the responsibilities of each agency and discipline
Included in Training (Knowledge)
- Support parents to access mental health support as required
Not Included in Training (Knowledge)
- Contribute to multi-professional/ multi-agency intervention
Included in Training (Knowledge)
Not Included in Training (Knowledge)
- Be able to complete questionnaires, and other measures to inform the interventions of other agencies and specialist services
Included in Training (Knowledge)
Not Included in Training (Knowledge)
- Where appropriate have basic knowledge of medication that a child or young person is taking, such as ADHD medication
Included in Training (Knowledge)
Not Included in Training (Knowledge)
- Be aware of theories of coaching and adult learning theory and how this support using new skills in practice
- Be aware of the range of services and resources available to support selfcare and staff wellbeing
Included in Training (Knowledge)
Not Included in Training (Knowledge)
- Make use of supervision and support from other members of staff to manage your own emotional responses to providing care and protection for children
- Reflect on your practice and use reflective tools to do so
- Use coaching to translate new skills into practice
- Be able to present an honest and open account of work undertaken
- Be able to recognise when your ability to self-regulate is compromised and take steps to seek supports with this, such as supervision/reflective practice/self-care
- Promote the use of self-care and staff wellbeing resources in your workplace
Included in Training (Knowledge)
- Be able to identify where usual practices and/or the environment is impacting on a child or young person’s wellbeing and adjust accordingly
- Be able to use practical strategies, such as technology and adapting communication, to help meet the needs of the individual by facilitating effective communication about supports and interventions
- Able to adjust intervention work in accordance with any additional support needs of children and young people
Not Included in Training (Knowledge)
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